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Rapid Expert Consultations on the COVID-19 Pandemic - Engineering National Academies Of Sciences - Bog - National Academies Press - Plusbog.dk

Rapid Expert Consultations on the COVID-19 Pandemic - Engineering National Academies Of Sciences - Bog - National Academies Press - Plusbog.dk

In response to a request from the Office of Science and Technology Policy and the Office of the Assistant Secretary for Preparedness and Response, the National Academies of Sciences, Engineering, and Medicine convened a standing committee of experts to help inform the federal government on critical science and policy issues related to emerging infectious diseases and other 21st century health threats. This set of Rapid Expert Consultations are the first of their kind and represent the best evidence available to the Committee at the time each publication was released. The science on these issues is continually evolving, and the scientific consensus the Committee reaches on these topics will likely evolve with it. The standing committee includes members with expertise in emerging infectious diseases, public health, public health preparedness and response, biological sciences, clinical care and crisis standards of care, risk communication, and regulatory issues. Table of ContentsFront MatterRapid Expert Consultation on Severe Illness in Young Adults for the COVID-19 Pandemic (March 14, 2020)Rapid Expert Consultation on SARS-CoV-2 Surface Stability and Incubation for the COVID-19 Pandemic (March 15, 2020)Rapid Expert Consultation on Social Distancing for the COVID-19 Pandemic (March 19, 2020)Rapid Expert Consultation on Data Elements and Systems Design for Modeling and Decision Making for the COVID-19 Pandemic (March 21, 2020)Rapid Expert Consultation Update on SARS-CoV-2 Surface Stability and Incubation for the COVID-19 Pandemic (March 27, 2020)Rapid Expert Consultation on Crisis Standards of Care for the COVID-19 Pandemic (March 28, 2020)Rapid Expert Consultation on the Possibility of Bioaerosol Spread of SARS-CoV-2 for the COVID-19 Pandemic (April 1, 2020)Rapid Expert Consultation on SARS-CoV-2 Survival in Relation to Temperature and Humidity and Potential for Seasonality for the COVID-19 Pandemic (April 7, 2020)Rapid Expert Consultation on SARS-CoV-2 Laboratory Testing for the COVID-19 Pandemic (April 8, 2020)Rapid Expert Consultation on the Effectiveness of Fabric Masks for the COVID-19 Pandemic (April 8, 2020)Rapid Expert Consultation on SARS-CoV-2Viral Shedding and Antibody Response forthe COVID-19 Pandemic (April 8, 2020)

DKK 266.00
1

Finding What Works in Health Care - Board On Health Care Services - Bog - National Academies Press - Plusbog.dk

Finding What Works in Health Care - Board On Health Care Services - Bog - National Academies Press - Plusbog.dk

Healthcare decision makers in search of reliable information that compares health interventions increasingly turn to systematic reviews for the best summary of the evidence. Systematic reviews identify, select, assess, and synthesize the findings of similar but separate studies, and can help clarify what is known and not known about the potential benefits and harms of drugs, devices, and other healthcare services. Systematic reviews can be helpful for clinicians who want to integrate research findings into their daily practices, for patients to make well-informed choices about their own care, for professional medical societies and other organizations that develop clinical practice guidelines. Too often systematic reviews are of uncertain or poor quality. There are no universally accepted standards for developing systematic reviews leading to variability in how conflicts of interest and biases are handled, how evidence is appraised, and the overall scientific rigor of the process. In Finding What Works in Health Care the Institute of Medicine (IOM) recommends 21 standards for developing high-quality systematic reviews of comparative effectiveness research. The standards address the entire systematic review process from the initial steps of formulating the topic and building the review team to producing a detailed final report that synthesizes what the evidence shows and where knowledge gaps remain. Finding What Works in Health Care also proposes a framework for improving the quality of the science underpinning systematic reviews. This book will serve as a vital resource for both sponsors and producers of systematic reviews of comparative effectiveness research. Table of ContentsFront MatterSummary1 Introduction2 Standards for Initiating a Systematic Review3 Standards for Finding and Assessing Individual Studies4 Standards for Synthesizing the Body of Evidence5 Standards for Reporting Systematic Reviews6 Improving the Quality of Systematic Reviews: Discussion, Conclusions, and RecommendationsAppendix A: Abbreviations and AcronymsAppendix B: GlossaryAppendix C: Workshop Agenda and Questions to PanelistsAppendix D: Expert Guidance for Chapter 2: Standards for Initiating a Systematic ReviewAppendix E: Expert Guidance for Chapter 3: Standards for Finding and Assessing Individual StudiesAppendix F: Expert Guidance for Chapter 4: Standards for Synthesizing the Body of EvidenceAppendix G: Expert Guidance for Chapter 5: Standards for Reporting Systemic ReviewsAppendix H: Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) ChecklistAppendix I: Committee Biographies

DKK 377.00
1

Developing a Multidisciplinary and Multispecialty Workforce for Patients with Cancer, from Diagnosis to Survivorship - Board On Global Health - Bog -

Developing a Multidisciplinary and Multispecialty Workforce for Patients with Cancer, from Diagnosis to Survivorship - Board On Global Health - Bog -

Patients living with and beyond cancer often require care from a wide range of clinicians as they navigate cancer diagnosis, treatment, and survivorship care. To examine opportunities to improve equitable access to high-quality multispecialty and multidisciplinary expert care for people living with and beyond cancer, the National Academies National Cancer Policy Forum hosted a public workshop in collaboration with the Global Forum on Innovation in Health Professional Education. Table of ContentsFront MatterProceedings of a WorkshopAppendix A: Statement of TaskAppendix B: Workshop Agenda

DKK 312.00
1

Review of NASA's Evidence Reports on Human Health Risks - Health And Medicine Division - Bog - National Academies Press - Plusbog.dk

Review of NASA's Evidence Reports on Human Health Risks - Health And Medicine Division - Bog - National Academies Press - Plusbog.dk

This is the fourth in a series of five letter reports that provide an independent review of the more than 30 evidence reports that NASA has compiled on human health risks for long-duration and exploration spaceflights.This letter report reviews eight evidence reports and examines the quality of the evidence, analysis, and overall construction of each report; identifies existing gaps in report content; and provides suggestions for additional sources of expert input. Table of ContentsFront Matter2016 Letter ReportAppendix A: Meeting AgendasAppendix B: Committee Biographical Sketches

DKK 318.00
1

Monitoring International Labor Standards - Division Of Behavioral And Social Sciences And Education - Bog - National Academies Press - Plusbog.dk

Monitoring International Labor Standards - Division Of Behavioral And Social Sciences And Education - Bog - National Academies Press - Plusbog.dk

The NRC has convened the Committee on Monitoring International Labor Standards to provide expert, science-based advice on monitoring compliance with international labor standards. The committee held a workshop in July 2002 to assess the quality of information and measures of progress towards compliance with international labor standards. This document summarizes the workshop. Reflecting the workshop agenda, this report focuses primarily on the availability and quality of information to measure compliance with four core international labor standards that were identified in 1998 by the ILO. The goal of this workshop summary is to communicate the key ideas and themes that emerged from the workshop presentations and discussions.

DKK 305.00
1

Effective Care for High-Need Patients - National Academy Of Medicine - Bog - National Academies Press - Plusbog.dk

Effective Care for High-Need Patients - National Academy Of Medicine - Bog - National Academies Press - Plusbog.dk

To advance insights and perspectives on how to better manage the care of the high-need patient population, the National Academy of Medicine, with guidance from an expert planning committee, was tasked with convening three workshops held between July 2015 and October 2016. The resulting special publication, Effective Care for High-Need Patients: Opportunities for Improving Outcomes, Value, and Health, summarizes the presentations, discussions, and relevant literature. Table of ContentsFront MatterSummary1 Introduction and Overview2 Key Characteristics of High-Need Patients3 Patient Taxonomy and Implications for Care Delivery4 Care Models That Deliver5 Policy to Support the Spread and Scale of Care Models6 Common Themes and Opportunities for ActionAppendixesAppendix A: Care Model Case StudiesAppendix B: Workshop AgendasAppendix C: Workshop ParticipantsAppendix D: Biographical Sketches

DKK 273.00
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Acute Exposure Guideline Levels for Selected Airborne Chemicals - Committee On Acute Exposure Guideline Levels - Bog - National Academies Press -

Acute Exposure Guideline Levels for Selected Airborne Chemicals - Committee On Acute Exposure Guideline Levels - Bog - National Academies Press -

At the request of the Department of Defense and the Environmental Protection Agency, the National Research Council has reviewed the relevant scientific literature compiled by an expert panel and established Acute Exposure Guideline Levels (AEGLs) for several chemicals. AEGLs represent exposure levels below which adverse health effects are not likely to occur and are useful in responding to emergencies, such as accidental or intentional chemical releases in community, workplace, transportation, and military settings, and for the remediation of contaminated sites. Three AEGLs are approved for each chemical, representing exposure levels that result in: 1) notable but reversible discomfort; 2) long-lasting health effects; and 3) life-threatening health impacts. Acute Exposure Guideline Levels for Selected Airborne Chemicals: Volume 13 includes AEGLs for boron trifluoride, bromoacetone, chloroacetone, hexafluoroacetone, perchloryl fluoride, piperidine, propargyl alcohol, trimethoxysilane and tetramethoxysilane, and trimethylbenzenes.

DKK 344.00
1

The Pervasive Role of Science, Technology, and Health in Foreign Policy - National Research Council - Bog - National Academies Press - Plusbog.dk

The Pervasive Role of Science, Technology, and Health in Foreign Policy - National Research Council - Bog - National Academies Press - Plusbog.dk

Issues involving science, technology, and health (STH) have moved to the forefront of the international diplomatic agenda. Other vital issues linked to technological developments pervade longer-range foreign policy concerns. Thus, STH considerations are often central to the Department of State?s bilateral and multilateral interactions with other governments. STH aspects play a large role in discussions of such critical topics as nuclear nonproliferation, use of outer space, population growth, adequate and safe food supply, climate change, infectious diseases, energy resources, and competitiveness of industrial technologies. In addressing these issues, expert STH knowledge is essential to the anticipation and resolution of problems and to the achievement of foreign policy goals. The Department, recognizing that it requires strengthened capabilities to address such an array of topics, asked for suggestions by the National Research Council as to how it could better deal with foreign policy issues with STH content.

DKK 364.00
1

Evaluating Federal Research Programs - National Academy Of Sciences - Bog - National Academies Press - Plusbog.dk

Evaluating Federal Research Programs - National Academy Of Sciences - Bog - National Academies Press - Plusbog.dk

The Government Performance and Results Act (GPRA), passed by Congress in 1993, requires that federal agencies write five-year strategic plans with annual performance goals and produce an annual report that demonstrates whether the goals have been met. The first performance reports are due in March 2000. Measuring the performance of basic research is particularly challenging because major breakthroughs can be unpredictable and difficult to assess in the short term. This book recommends that federal agencies use an "expert review" method to examine the quality of research they support, the relevance of that research to their mission, and whether the research is at the international forefront of scientific and technological knowledge. It also addresses the issues of matching evaluation measurements to the character of the research performed, improving coordination among agencies when research is in the same field, and including a human resource development component in GPRA strategic and performance plans.

DKK 305.00
1

Public Health Lessons for Non-Vaccine Influenza Interventions - National Academy Of Medicine - Bog - National Academies Press - Plusbog.dk

Public Health Lessons for Non-Vaccine Influenza Interventions - National Academy Of Medicine - Bog - National Academies Press - Plusbog.dk

The COVID-19 pandemic has challenged the world's preparedness for a respiratory virus event. While the world has been combating COVID-19, seasonal and pandemic influenza remain imminent global health threats. Non-vaccine public health control measures can combat emerging and ongoing influenza outbreaks by mitigating viral spread. Public Health Lessons for Non-Vaccine Influenza Interventions examines provides conclusions and recommendations from an expert committee on how to leverage the knowledge gained from the COVID-19 pandemic to optimize the use of public health interventions other than vaccines to decrease the toll of future seasonal and potentially pandemic influenza. It considers the effectiveness of public health efforts such as use of masks and indoor spacing, use of treatments such as monoclonal antibodies, and public health communication campaigns. Table of ContentsFront MatterSummary1 Introduction2 Surveillance3 Effectiveness of Non-Vaccine Control Measures4 Implementation of Non-Vaccine Control Measures5 Therapeutics6 Concluding ThoughtsAppendix A: Committee and Staff BiographiesAppendix B: Public Meeting AgendasAppendix C: Study Approach

DKK 344.00
1

Acute Exposure Guideline Levels for Selected Airborne Chemicals - Committee On Toxicology - Bog - National Academies Press - Plusbog.dk

Acute Exposure Guideline Levels for Selected Airborne Chemicals - Committee On Toxicology - Bog - National Academies Press - Plusbog.dk

At the request of the Department of Defense and the Environmental Protection Agency, the National Research Council has reviewed the relevant scientific literature compiled by an expert panel and established Acute Exposure Guideline Levels (AEGLs) for several chemicals. AEGLs represent exposure levels below which adverse health effects are not likely to occur and are useful in responding to emergencies, such as accidental or intentional chemical releases in community, workplace, transportation, and military settings, and for the remediation of contaminated sites. Three AEGLs are approved for each chemical, representing exposure levels that result in: 1) notable but reversible discomfort; 2) long-lasting health effects; and 3) life-threatening health impacts. This volume in the series includes AEGLs for bis-chloromethyl ether, chloromethyl methyl ether, chlorosilanes, nitrogen oxides, and vinyl chloride. Table of ContentsFront MatterAcute Exposure Guideline Levels for Selected Airborne Chemicals--Volume 11IntroductionAppendixes1 bis-Chloromethyl Ether: Acute Exposure Guideline Levels2 Chloromethyl Methyl Ether: Acute Exposure Guideline Levels3 Selected Chlorosilanes: Acute Exposure Guideline Levels4 Nitrogen Oxides: Acute Exposure Guideline Levels5 Vinyl Chloride: Acute Exposure Guideline Levels

DKK 312.00
1

Strategies for a BEA Satellite Health Care Account - Division Of Behavioral And Social Sciences And Education - Bog - National Academies Press -

Strategies for a BEA Satellite Health Care Account - Division Of Behavioral And Social Sciences And Education - Bog - National Academies Press -

In March 2008, the Committee on National Statistics of the National Academies held a workshop to assist the Bureau of Economic Analysis (BEA) with next steps as it develops plans to produce a satellite health care account. This account, designed to improve its measurement of economic activity in the medical care sector, will benefit health care policy. The purpose of the workshop, summarized in this volume, was to elicit expert guidance on strategies to implement the objectives of the BEA program. The ultimate objectives of the program are to: * compile medical care spending information by type of disease-a system more directly useful for measuring health care inputs, outputs, and productivity than current estimates of spending by type of provider; * produce a comprehensive set of accounts for health care-sector income, expenditure, and product; * develop medical care price and real output measures that will help analysts to break out changes in the delivery of health care from changes in the prices of that care; * and coordinate BEA and Centers for Medicare and Medicaid Services (CMS) health expenditure statistics.

DKK 266.00
1

Imagining the Future of Undergraduate STEM Education - National Academy Of Engineering - Bog - National Academies Press - Plusbog.dk

Imagining the Future of Undergraduate STEM Education - National Academy Of Engineering - Bog - National Academies Press - Plusbog.dk

In November 2020, the National Academies of Sciences, Engineering, and Medicine convened a multi-day virtual symposium on imaging the future of undergraduate STEM education. Speakers and participants pondered the future and the past and shared their goals, priorities, and dreams for improving undergraduate STEM education. Expert speakers presented information about today's students and approaches to undergraduate STEM education, as well as the history of transformation in higher education. Thoughtful discussions explored ideas for the future, how student-centered learning experiences could be created, and what issues to consider to facilitate a successful transformation. This publication summarizes the presentation and discussion of the symposium. Table of ContentsFront Matter1 Introduction2 Goals for the Future: Changing Purposes of Undergraduate STEM Education3 Transformation in the U.S. Higher Education System4 Learning from Today's Students5 Designing for Tomorrow's Students: Creating Equitable Opportunities for Undergraduate STEM Students6 The Role of Technology7 Innovations and Strategies for Moving Forward8 Final ReflectionsReferencesAppendix A: Statement of TaskAppendix B: Symposium AgendaAppendix C: Biographical Sketches of Symposium Speakers and Moderators

DKK 188.00
1

Review of NASA's Evidence Reports on Human Health Risks - Institute Of Medicine - Bog - National Academies Press - Plusbog.dk

Review of NASA's Evidence Reports on Human Health Risks - Institute Of Medicine - Bog - National Academies Press - Plusbog.dk

Review of NASA's Evidence Reports on Human Health Risks 2015 Letter Report is the third in a series of five reports from the Institute of Medicine that will independently review more than 30 evidence reports that the National Aeronautics and Space Administration has compiled on human health risks for long-duration and exploration space flights. This report builds on the 2008 IOM report Review of NASA's Human Research Program Evidence Books: A Letter Report, which provided an initial and brief review of the evidence reports. This letter report reviews seven evidence reports and examines the quality of the evidence, analysis, and overall construction of each report; identifies existing gaps in report content; and provides suggestions for additional sources of expert input. The report analyzes each evidence report's overall quality, which included readability; internal consistency; the source and breadth of cited evidence; identification of existing knowledge and research gaps; authorship expertise; and, if applicable, response to recommendations from the 2008 IOM letter report. Table of ContentsFront Matter2015 Letter ReportReferencesAppendix A: Meeting AgendasAppendix B: Committee Biographical Sketches

DKK 383.00
1

Realizing the Promise of Equity in the Organ Transplantation System - Cost Effective Committee On A Fairer And More Equitable - Bog - National

Realizing the Promise of Equity in the Organ Transplantation System - Cost Effective Committee On A Fairer And More Equitable - Bog - National

Each year, the individuals and organizations in the U.S. organ donation, procurement, allocation, and distribution system work together to provide transplants to many thousands of people, but thousands more die before getting a transplant due to the ongoing shortage of deceased donor organs and inequitable access to transplant waiting lists. Realizing the Promise of Equity in the Organ Transplantation System, a new consensus study report from the National Academies of Sciences, Engineering, and Medicine's Committee on A Fairer and More Equitable, Cost-Effective, and Transparent System of Donor Organ Procurement, Allocation, and Distribution, provides expert recommendations to improve fairness, equity, transparency, and cost-effectiveness in the donor organ system. Table of ContentsFront MatterSummary1 Introduction and Study Context2 The U.S. Organ Transplantation System and Opportunities for Improvement3 Foundations for a Trustworthy Deceased Donor Organ Transplantation System4 Confronting and Eliminating Inequities in the Organ Transplantation System5 Saving More Lives and Enhancing Equity with Deceased Donor Organ Allocation Policies6 Improving Procurement, Acceptance, and Use of Deceased Donor Organs7 Measuring and Improving System PerformanceAppendix A: Public Meeting AgendasAppendix B: IOM and National Academies Solid Organ Transplantation ReportsAppendix C: Biographical Sketches of Committee Members and Staff

DKK 370.00
1

Glutamate-Related Biomarkers in Drug Development for Disorders of the Nervous System - Forum On Neuroscience And Nervous System Disorders - Bog -

Glutamate-Related Biomarkers in Drug Development for Disorders of the Nervous System - Forum On Neuroscience And Nervous System Disorders - Bog -

Glutamate is the most pervasive neurotransmitter in the central nervous system (CNS). Despite this fact, no validated biological markers, or biomarkers, currently exist for measuring glutamate pathology in CNS disorders or injuries. Glutamate dysfunction has been associated with an extensive range of nervous system diseases and disorders. Problems with how the neurotransmitter glutamate functions in the brain have been linked to a wide variety of disorders, including schizophrenia, Alzheimer's, substance abuse, and traumatic brain injury. These conditions are widespread, affecting a large portion of the United States population, and remain difficult to treat. Efforts to understand, treat, and prevent glutamate-related disorders can be aided by the identification of valid biomarkers. The Institute of Medicine's Forum on Neuroscience and Nervous System Disorders held a workshop on June 21-22, 2010, to explore ways to accelerate the development, validation, and implementation of such biomarkers. Glutamate-Related Biomarkers in Drug Development for Disorders of the Nervous System: Workshop Summary investigates promising current and emerging technologies, and outlines strategies to procure resources and tools to advance drug development for associated nervous system disorders. Moreover, this report highlights presentations by expert panelists, and the open panel discussions that occurred during the workshop.

DKK 169.00
1

Review of NASA's Evidence Reports on Human Health Risks - Institute Of Medicine - Bog - National Academies Press - Plusbog.dk

Review of NASA's Evidence Reports on Human Health Risks - Institute Of Medicine - Bog - National Academies Press - Plusbog.dk

Review of NASA's Evidence Reports on Human Health Risks 2014 Letter Report is the second in a series of five reports from the Institute of Medicine that will independently review more than 30 evidence reports that the National Aeronautics and Space Administration has compiled on human health risks for long-duration and exploration space flights. This report builds on the 2008 IOM report Review of NASA's Human Research Program Evidence Books: A Letter Report, which provided an initial and brief review of the evidence reports. This letter report reviews seven evidence reports and examines the quality of the evidence, analysis, and overall construction of each report; identifies existing gaps in report content; and provides suggestions for additional sources of expert input. The report analyzes each evidence report's overall quality, which included readability; internal consistency; the source and breadth of cited evidence; identification of existing knowledge and research gaps; authorship expertise; and, if applicable, response to recommendations from the 2008 IOM letter report. Table of ContentsFront MatterReview of NASA's Evidence Reports on Human Health Risks: 2014 Letter ReportReferencesAppendix A: Meeting AgendasAppendix B: Committee Biographical Sketches

DKK 292.00
1

Peer Review in the Department of Energy-Office of Science and Technology - National Research Council - Bog - National Academies Press - Plusbog.dk

Peer Review in the Department of Energy-Office of Science and Technology - National Research Council - Bog - National Academies Press - Plusbog.dk

The Office of Science and Technology (OST) of the U.S. Department of Energy's (DOE's) Office of Environmental Management (EM) recently has instituted a peer review program that uses the American Society of Mechanical Engineers (ASME), with administrative and technical support provided by the Institute for Regulatory Science (RSI), to conduct peer reviews of technologies (or groups of technologies) at various stages of development. OST asked the NRC to convene an expert committee to evaluate the effectiveness of its new peer review program and to make specific recommendations to improve the program, if appropriate. This is the first of two reports to be prepared by this committee on OST's new peer review program. OST requested this interim report to provide a preliminary assessment of OST's new peer review program. In the final report, the committee will provide a more detailed assessment of OST's peer review program after its first complete annual cycle. Table of ContentsFront MatterExecutive SummaryIntroductionDefinition of Peer ReviewBenefits of Peer ReviewPeer Review ProcessImplementation of the Peer Review ProgramReferencesAppendix A: Description of OST's Peer Review ProgramAppendix B: Description of OST's Technology Investment Decision ModelAppendix C: Description of OST's Review ProgramAppendix D: Biographical SketchesAppendix E: Acronyms

DKK 208.00
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Ensuring an Effective Public Health Emergency Medical Countermeasures Enterprise - Health And Medicine Division - Bog - National Academies Press -

Ensuring an Effective Public Health Emergency Medical Countermeasures Enterprise - Health And Medicine Division - Bog - National Academies Press -

The U.S. medical countermeasures (MCMs) enterprise is interconnected, complex, and dynamic. It includes public and private entities that develop and manufacture new and existing MCMs, ensure procurement, storage, and distribution of MCMs, and administer, monitor, and evaluate MCMs. The interagency group known as the Public Health Emergency Medical Countermeasures Enterprise (PHEMCE) is the nation's sole coordinating body, responsible for ensuring end-to-end MCM preparedness and response. Ensuring an Effective Public Health Emergency Medical Countermeasures Enterprise provides recommendations from an expert committee for a re-envisioned PHEMCE. Four priority areas of improvement emerged from committee deliberations: (1) articulating PHEMCE's mission and role and explicating the principles guiding PHEMCE's operating principles and processes, (2) revising PHEMCE operations and processes, (3) collaborating more effectively with external public and private partners, and (4) navigating legal and policy issues. Table of ContentsFront MatterSummary1 Introduction2 Delivering on PHEMCE's Mission3 Ensuring That PHEMCE Decisions and Recommendations Are Defensible4 Engaging Nonfederal and Private-Sector Partners and Stakeholders in PHEMCE's Mission5 Legal and Policy Considerations Underlying PHEMCE Operations and ImplementationAppendix A: Study MethodsAppendix B: Committee and Staff BiosketchesAppendix C: Disclosure of Unavoidable Conflicts of Interest

DKK 240.00
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Selected Heritable Disorders of Connective Tissue and Disability - Health And Medicine Division - Bog - National Academies Press - Plusbog.dk

Selected Heritable Disorders of Connective Tissue and Disability - Health And Medicine Division - Bog - National Academies Press - Plusbog.dk

Heritable disorders of connective tissue (HDCTs) are a diverse group of inherited genetic disorders and subtypes. Because connective tissue is found throughout the body, the impairments associated with HDCTs manifest in multiple body systems and may change or vary in severity throughout an affected individual's lifetime. In some cases, these impairments may be severe enough to qualify an eligible child or adult for monetary benefits through the U.S. Social Security Administration's (SSA's) Social Security Disability Insurance or Supplemental Security Income program. SSA asked the National Academies of Sciences, Engineering, and Medicine to convene an expert committee that would provide current information regarding the diagnosis, treatment, and prognosis of selected HDCTs, including Marfan syndrome and the Ehlers-Danlos syndromes, and the effect of the disorders and their treatment on functioning. The resulting report, Selected Heritable Disorders of Connective Tissue and Disability, presents the committee's findings and conclusions. Table of ContentsFront MatterSummary1 Introduction2 Overview of Hereditary Disorders of Connective Tissue3 Marfan Syndrome and Related Hereditary Aortopathies4 Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders5 Heritable Disorders of Connective Tissue and Effects on Function6 Overall ConclusionsAppendix A: Public Session AgendasAppendix B: Commissioned PaperAppendix C: Selected ResourcesAppendix D: Biographical Sketches of Committee Members

DKK 279.00
1

Emerging Issues in Hispanic Health - Center For Social And Economic Studies - Bog - National Academies Press - Plusbog.dk

Emerging Issues in Hispanic Health - Center For Social And Economic Studies - Bog - National Academies Press - Plusbog.dk

Hispanics are defined as people of Spanish-speaking origin from Latin America, the Caribbean, or Europe. Hispanics vary in terms of socioeconomic status, race, religion and/or more. A common occurrence among the Hispanics, however, are the emerging issues concerning their health.It is estimated that by 2050 Hispanics will make up more than 25% of the United States' population. It is thus important that they have the resources to contribute maximally to American society. This can come about by first understanding and dealing with issues surrounding their health. In hopes of examining these issues and as a part of its continuing commitment to promote a national dialogue on race and diversity in the United States, the National Academies organized an expert meeting on Emerging Issues in Hispanic Health on April 10, 2002. Emerging Issues in Hispanic Health: Summary of a Workshop includes a review of key demographic data, such as population statistics, that characterize the Hispanic population in the United States; research on the socioeconomic, sociocultural, and behavioral determinants of health; effects of selective migration; the apparent epidemiological paradox : the relatively positive health outcomes observed in some Hispanic populations despite their relatively poor socioeconomic status or other types of disadvantage such as discrimination; and more.

DKK 305.00
1